Evidence-based information supports links

Pelvic Pain

• QENDO – Queensland Endometriosis Association – leading lobbying group in Australia and New Zealand for Endometriosis and other pelvic health-related conditions (www.qendo.org.au)

• Pelvic Pain Foundation of Australia (https://www.pelvicpain.org.au/)

• Download the QENDO App for free on the App Store or Play Store (https://www.qendo.org.au/qendo-app)

• Australian Coalition for Endometriosis (ACE) and pelvic pain in Australia (https://www.acendo.com.au/)

• Endozone – developed by the Australian Government and Jean Hailes (https://www.endozone.com.au/)

• Australasian Gynaecological Endoscopy & Surgery (AGES) Society (https://ages.com.au/)

• Julia Argyrou Endometriosis Centre (https://www.epworth.org.au/our-services/endometriosis-centre/the-centre)

• National Action Plan for Endometriosis (https://static1.squarespace.com/static/63f80f42e6cfe44b15e0927b/t/63fc4ec9817b721648a5408b/1677479628183/national-action-plan-for-endometriosis+%281%29.pdf)

• Endometriosis Clinical Practice Guidelines (https://www.jeanhailes.org.au/uploads/09_HP-tools/Endometriosis-clinical-practice-guideline-RANZCOG.pdf)

• Jean Hailes - Information on a range of conditions affecting women + assigned female at birth (AFAB) (https://www.jeanhailes.org.au/)

• Australasian Menopause Society - information on all things peri and menopause related (https://www.menopause.org.au/)

• Chronic Pain Australia (https://chronicpainaustralia.org.au/)

• Period pain and Pelvic pain TENS machine (https://www.taphealth.nz/)

• Support groups

  • EndoActive - peer support and sharing stories (https://endoactive.org.au/)

  • QENDO – has a peer support group for most major cities/states through Facebook – search for one that includes your local city/state you live in

  • Endometriosis Support Australia – search in groups through your Facebook account

  • Kosi Community – Kosi are a heat pack company developed by Kellie a woman living with Endometriosis – designed for her community on Facebook, so if you have a Kosi join it!

  • Nancy’s Nook Endometriosis Education - search in groups through your Facebook account

Neurodivergence

• Autism Australia (https://www.autismawareness.com.au/)

• Divergent Futures (https://www.divergentfutures.com/)

• ADHD Australia (https://www.adhdaustralia.org.au)

• ADHD Foundation (https://adhdfoundation.org.au/)

• Dyslexia: SPELD Foundation (https://dsf.net.au)

• Tourette Syndrome Association of Australia (https://tourette.org.au)

• Support groups:

  • Parents of ADHDers (https://www.facebook.com/groups/143509386460369/) - link to Facebook group

Connective Tissue Disorders

• The Ehlers-Danlos Society (Australia) (https://www.ehlers-danlos.com/what-is-eds/)

• Ehlers-Danlos Support UK (https://www.ehlers-danlos.org/what-is-eds/)

• Australian POTS Foundation (https://potsfoundation.org.au/what-is-pots/)

• Australasian Mastocytosis – leading support + advocacy + research group for mast cell disorders in the Australasian area (https://mastocytosis.org.au/)